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Grace Elizabeth Ekis

April 20, 2002 – February 14, 2008

Grace was diagnosed in January 2007 with a Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable tumor located in the brainstem, at the base of the brain. Affecting primarily children, it is the rarest and worst of all pediatric brain tumors.  Approximately 150 to 200 children are diagnosed with this type of tumor each year, and survival time is typically just nine to twelve months from diagnosis. Treatment options are limited and none offer a cure. Radiation and chemotherapy can be used in an attempt to shrink the tumor and reduce symptoms, but typically there is renewed tumor progression within six to nine months. There is no known cure for this type of cancer and there have been no advances in treatment options for more than thirty years. After a courageous 13-month battle, Grace danced her way to heaven on Valentine's Day 2008 – just two months shy of her sixth birthday.
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Reflections Of Grace
Despair over the loss of their child coupled with frustration over a lack of available treatment options led Tamara and Brian Ekis to form the Reflections Of Grace Foundation in their daughter’s memory.  The name – Reflections Of Grace – signifies the effect their child had on the lives of those she touched over the course of her short life. As its mission, the Reflections Of Grace Foundation is dedicated to:
  • Providing financial, emotional, and educational support for the families of children affected by pediatric brain cancer.
  • Raising awareness of all types of pediatric brain tumors, with a particular focus on Diffuse Intrinsic Pontine Glioma (DIPG), sometimes known as Brainstem Glioma.
  • Joining with other like-minded organizations in educating, aiding and funding the search for a cure for DIPG and other forms of pediatric brain cancer, in the hope of curing all cancers.

Reflections Of Grace Foundation, Inc. is a 501(c)(3) nonprofit organization as designated by the Internal Revenue Code.

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