Grace Elizabeth EkisApril 20, 2002 – February 14, 2008 Grace was diagnosed in January 2007 with a Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable tumor located in the brainstem, at the base of the brain. Affecting primarily children, it is the rarest and worst of all pediatric brain tumors. Approximately 150 to 200 children are diagnosed with this type of tumor each year, and survival time is typically just nine to twelve months from diagnosis. Treatment options are limited and none offer a cure. Radiation and chemotherapy can be used in an attempt to shrink the tumor and reduce symptoms, but typically there is renewed tumor progression within six to nine months. There is no known cure for this type of cancer and there have been no advances in treatment options for more than thirty years. After a courageous 13-month battle, Grace danced her way to heaven on Valentine's Day 2008 – just two months shy of her sixth birthday. |
News & EventsPittsburgh Post-Gazette (Front Page 6.0 MB PDF) McKeesport Daily News: Picture-perfect weather greets Race for Grace participants KDKA: Annual 'Race For Grace' Held In North Huntingdon WTAE: Hundreds Of Racers Honor Girl Who Died From Brain Cancer Norwin Star: With heavy hearts, Ekis family and organizers prepare for third "Race for Grace" Pittsburgh Post-Gazette: Gear up for Grace Norwin Star: Submit your race photos Race for Grace a test of endurance and a chance to do some good |
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