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Awareness Campaign

One part of our tri-fold mission is to raise awareness of pediatric brain cancer. Because DIPG is considered one of the rarest and worst of pediatric brain tumors, there is often a tremendous lack of knowledge surrounding it. Our goal is to heighten the general public’s understanding of this dreaded disease.

Here at Reflections Of Grace, we believe that increased awareness will lead to increased funding for research, which will ultimately lead to better treatment options for DIPG. Please help us take that first step – increasing awareness – by wearing your Reflections Of Grace apparel whenever you travel or attend large public events. You never know who will see your t-shirt, hat, car magnet, coffee mug, or gray ribbon and ask what it stands for.

We want to see where you are spreading awareness, so please be sure to share your photos with us! Email your pictures to This e-mail address is being protected from spambots, you need JavaScript enabled to view it and we will post them on our Facebook page within a week. We enjoy seeing all of the different ways that you get the word out…be as fun and creative as you wish!

Thanks in advance for assisting us with this endeavor. How will YOU spread awareness?

 

Just as most do not know that the gold ribbon has been the symbol of childhood cancer since 1970, people would not guess by looking at me that my youngest child is among the one in 330 who will develop cancer by the age of twenty.  I blend into the crowd in a restaurant, but our living room resembles a pediatric intensive care unit, and we check into the local hospital for chemotherapy every three weeks.  I look like the average shopper in a grocery store, but my son is one of over 12,500 children diagnosed with cancer every year.  My husband preaches on Sunday mornings, studies during the week, and gets up in the middle of the night every night to attend to the needs of an 8-year-old who has lost the use of the left side of his body.  My ten-year-old daughter will enter fifth grade this month; she has befriended three little girls who are battling cancer, and her heroes are the nurses who dedicate their lives to caring for children like her brother.  My thirteen-year-old son enjoys reading and lives with the knowledge that we don’t know how long his brother will continue to beat the odds.  Diffuse intrinsic pontine glioma (DIPG) is one of the most deadly forms of pediatric cancer.  It is shocking to note that treatment for this particular brain cancer has not changed in more than 30 years.  A conservative estimate is that between 15 and 20 children die of DIPG each month, yet very little research is being done to try to combat this horrific killer of our children.

- Sandy Smith, mother of Andrew

 

Luminaria

 

An important element of the three-pronged mission adopted by the Reflections Of Grace Foundation is “raising awareness of all types of pediatric brain tumors, with a particular focus on Diffuse Intrinsic Pontine Gliomas (DIPGs), or Brainstem Gliomas.” Although the expression “raise awareness” is one that most of us hear and use on a regular basis, just what does it really mean? To many, it has become a vague unknown; the indistinct process of spreading information about a particular cause or issue. To the parents of a child lost to cancer, it carries a deeper significance and demands clearer focus – that of bringing pediatric brain tumors and other forms of childhood cancers to the forefront in the battle to conquer all cancer. Along these lines, we encourage you to raise awareness in any of the following ways:

  • Influence public policy by contacting your elected officials about the need for increased funding for research
  • Encourage others to attend fundraising events sponsored by nonprofit organizations supporting pediatric cancer-related causes
  • Spread the word from a grassroots standpoint – join a blog, e-mail your contacts, create and post a photo slideshow or video, or practice good old fashioned word-of-mouth!
  • Contact your local news media about producing content spotlighting childhood cancer recognition
  • Join a cancer network advocacy group