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Reflections Of Grace latest weblog entries

Dec 08


Posted by: tamara

Tagged in: Ornament , Grace , DIPG , December , Christmas , Cards , Andrew

On Friday, fellow DIPG warrior Andrew Smith earned his wings and joined the angels. Andrew had been bravely fighting for 2 years, much longer than many other DIPG children. Andrew's insight, wit and wisdom became a beacon of light for not only his family, but for many families traveling this road. I have often wished that Grace was able to meet Andrew. I imagine that the two of them could have come up with some VERY interesting ideas. I envision that when they meet in heaven, Grace and Andrew will become great friends.
When we received the news of Andrew's last breath here on Earth, Brian and I found ourselves with wounds again reopen. It is very hard to explain to you how we feel as we witness other families experiencing the loss of their children...we wish we could somehow stop them from going through this; that no one else would ever have to endure what we have experienced; that we could shelter them from the once unimaginable pain. It is even hard for us to offer words of sympathy, because we know that even though the words are spoken with the best intentions, they cannot begin take the edge off the devastation that is to come...

Please take a moment to visit Andrew's website and offer a few prayers for his

"And we know that the Son of God has come, and has given us
understanding, in order that we might know Him who is true, and we
are in Him who is true, in His Son Jesus Christ. This is the true
God and eternal life."
1 John 5:20

Also, I wanted to remind you that on Wednesday, December 9 at 7:30 pm, we will be having our second planning meeting for the 3rd Annual Race For Grace. The meeting will be held at the First United Methodist Church in Irwin (310 Oak Street). Please enter through the side doors from the parking lot.

In other Foundation news, we now have our first Christmas ornament for sale. It will certainly be a beautiful addition to your Christmas tree! Please go to to view and purchase the ornament.

Last but not least, I am sharing a message from fellow foundation The Cure Starts Now regarding the sale of their holiday cards:

Please spread holiday cheer while supporting pediatric brain cancer research. 13 amazing DIPG kids designed these adorable cards. Each pack has an assortment of 15 different designs on high-quality glossy 5x7 cards. Please visit and select "SHOP". Proceeds go to pediatric brain cancer research. Please help us to celebrate these amazing children by purchasing a pack!

Let us continue to walk in the light of the Christ Child as we encounter yet another Christmas season....
"Arise, shine; for your light has come..."
Isaiah 60:1