Posted by: tamara
on Aug 05, 2010
I have been meaning to post an update for a while now, but it seems that I do not either have the right words or the right time…this summer is passing all too quickly! Having Claire’s light shine brightly in our lives is a true joy. I am amazed at the happiness she brings, but daily fight the thoughts that it is not fair that Grace is missing this…she should be here to see Claire! As Garrett reminded us recently, Grace always said that there would be another baby in our family…and now she isn’t here to enjoy her! Grace would have been a great big sister. We have joked that if Grace were here, she would want Claire to change outfits 4 times a day and be the youngest baby ever to wear dress up clothes. One of the special gifts Claire received when she was born was a bathing suit that is really just like a tutu...it was the perfect gift for Grace’s baby sister. When Claire wore it for the first time, I thought that Grace would have adored it!
Along with trying to relish every second with Claire and keep Colin and Garrett involved in soccer, lacrosse and an occasional round of golf, we have been busy with Foundation work this summer. We have been planning the second annual Golf For Grace outing on September 11 and you can now – finally -- Find us on Facebook! All of this hard work by our many supporters is done for the ultimate goal of supporting families with financial relief and finding a cure for pediatric brain cancer. In the months of June and July alone $10,000 was awarded to eight families of children battling brain tumors and an additional 5 grants are set to be delivered by the end of next week. It is such a good feeling to be able to connect with these families and know that our efforts are easing the burden, if just a little bit. At the same time, our hearts will always feel pain as we learn of a new family struggling to deal with the overwhelming emotional and financial weight of a pediatric brain tumor diagnosis. We cannot thank our supporters, fundraisers and volunteers enough for making this family grant program a reality.
We know our work with the Foundation is still in its infancy. Recently we have learned of more children being diagnosed with brain tumors and still others are experiencing progression of their tumors. We have watched as families have passed anniversaries of their child’s journey to heaven and we have read CarePage and Caring Bridge updates that have announced that another precious child has joined Grace. This confirms that our effort to fund research and help families has merely just begun…
“May the God of endurance and encouragement grant you to live in such harmony with one another, in accord with Christ Jesus, that together you may with one voice glorify the God and Father of our Lord Jesus Christ…”